May 2017

World Lupus Day 2017: LupusChick’s 4 real answers to your questions

Patient Experiences / By

Today is World Lupus Day, and we’ve got a new video to share with you. Our partner LupusChick, Marisa Zappieri-Caruana, recently stopped by PatientsLikeMe and answered questions about some tips and tricks for living with lupus. Marisa sat down with Hayley Sykes, from the PatientsLikeMe Strategic Partnerships team, to answer the questions below. Patients posted […]

World Lupus Day 2017: LupusChick’s 4 real answers to your questions Read More »

Meeting PF patients where they are

2 Comments / Conditions, Idiopathic Pulmonary Fibrosis, Patient Experiences, Pulmonary fibrosis / By

Say hello to John (John_R), a father, grandfather and idiopathic pulmonary fibrosis (IPF) survivor. Sound familiar? Last year he shared his story about life after a double lung transplant and the importance of considering a lung transplant early. This year, John started a Facebook group to live-stream pulmonary fibrosis (PF) support group meetings and conferences.

Meeting PF patients where they are Read More »

Arthritis by the numbers: 50 million+ Americans live with it

Conditions, Patient Experiences / By

May is National Arthritis Awareness Month. How many people are living with this condition? 53 million Americans and counting. Various forms of arthritis – including osteoarthritis, rheumatoid arthritis, gout, lupus and fibromyalgia – are all on the rise, according to the CDC. Let’s look at some other facts and stats about arthritis, courtesy of the

Arthritis by the numbers: 50 million+ Americans live with it Read More »

It’s Melanoma Awareness Month, let’s talk famous faces who’ve battled melanoma

Conditions, Patient Experiences / By

Do you know anybody who has or had melanoma? If you answered yes, you’re among many others – melanoma is one of the most common cancers diagnosed in the United States. Rates of the skin cancer are increasing rapidly, particularly among younger people and in fact, cases of melanoma just in the last 30 years

It’s Melanoma Awareness Month, let’s talk famous faces who’ve battled melanoma Read More »

“Every morning that I wake up feeling well is a day to celebrate life.” Revisiting member Gloria’s journey

Conditions, Patient Experiences / By

We first met member Gloria (Glow4life) in 2015 when she shared her journey on the PatientsLikeMe blog. She opened up about her experiences from receiving a lung cancer diagnosis (adenocarcinoma), to the sudden loss of her husband and going through several rounds of treatment. Despite it all she never gave up hope, and two years

“Every morning that I wake up feeling well is a day to celebrate life.” Revisiting member Gloria’s journey Read More »

Scroll to Top