How does ALS make you feel #InThreeWords?

Posted May 17th, 2017 by

May is ALS awareness month and this year, we’re joining the ALS Therapy Development Institute to share how ALS makes us feel, #InThreeWords.

Sad, determined, frustrating as hell – just a few of the words PatientsLikeMe staff chose. Want to get involved? Check out what PatientsLikeMe staff had to say, including a video from our co-founder, Jamie Heywood.

PatientsLikeMe co-founder Jamie Heywood

 

Jenna Tobey, Manager, Customer Strategy and Value

 

Kate Brigham, Director, Design

 

Margot Carlson Delogne, VP, Communications

And, check out 2016-2017 Team of Advisor member Cris’ three words:

What are ALS members saying in the forum? 

 

“Enraged, alone, afraid”

– Kzueger 

“Uninvolved, sorrowful, useless”

mbond0623

“Frustrated, compassionate, claustrophobic.”

jimig

“Frustrated that I can’t stop this disease, overwhelmed at times by the losses created by ALS and grateful for kindness of others”

bountiful

“Helpless, angry, pissed off.”

MsJLB

 

Let’s spread the word and end ALS together.

 

Share this post on Twitter and help spread the word.


Leave a Comment