March 2016

Touched with fire: Reframing the dialogue of bipolar

We’ve talked a lot with new PatientsLikeMe member Paul, diving into issues like getting a diagnosis, management and coping, and overcoming stigma.  Now, Paul is sharing how he’s trying to change the conversation about bipolar through his debut feature film, Touched with Fire. Here he talks about framing Touched with Fire as a love story because in a condition defined […]

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Meet Angela from the PatientsLikeMe Team of Advisors

Say hello to Angela, another member of your 2015-2016 Team of Advisors. When she was diagnosed with MS in 2010, Angela was writing a book while balancing a busy schedule as a university lecturer and community volunteer. Angela sat down with us recently to talk about the new challenges of leading the life she wants

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PatientsLikeMe and M2Gen Announce Partnership and Plans for Landmark Cancer Experience Study

  CAMBRIDGE, Mass. & TAMPA, Fla., March 8, 2016—Patient network PatientsLikeMe® and informatics solutions provider M2Gen® are collaborating to give patients and researchers a more complete picture of patients’ experiences with cancer treatments and to shed new light on the factors that may affect outcomes and quality of life. The partnership aims to advance cancer

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“My data is going to empower the next patient” — PatientsLikeMe member Letitia shares her mission to #PayItForward

Many of you have already met Letitia, an active member of the epilepsy community and part of the 2014-2015 Team of Advisors. In her Patient Voice video, Letitia shares how her research on the site led her to the surgery that changed her life – she’s been seizure free for more than three years. Now,

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Touched with fire: Eliminating the stigma of bipolar

PatientsLikeMe member Paul is a filmmaker who’s harnessed his bipolar into creativity, most recently in the debut feature film, Touched with Fire, which he wrote, directed, edited and scored himself. In the last month, we’ve spoken with him about his diagnosis and what he does to cope. Now he’s opening up about fighting the stigma

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Oceans of Hope: An interview with PatientsLikeMe member Beth

Beth (sailebeb) has been living with MS since 2010, but it hasn’t stopped her from leading an active lifestyle. In the spring of 2015, she joined a crew of MS patients on a sailing trip from Tahiti to American Samoa. The journey was organized by the Sailing Sclerosis project, Oceans of Hope, to change perceptions that people

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