December 2015

RWJF Awards Grant to PatientsLikeMe to Develop New Measures for Healthcare Performance

Conditions, Research / By patientslikeme

Patient Network to Work with the National Quality Forum to Ensure Patients Drive Healthcare Value CAMBRIDGE, MA., December 8, 2015—PatientsLikeMe has been awarded a $900,000 grant from the Robert Wood Johnson Foundation (RWJF) to help jumpstart changes that will amplify the patient voice in the measurement of healthcare performance. A portion of the grant funds […]

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Gus’s story

ALS, Conditions / By patientslikeme

Last month, we introduced Gus, a member of your 2015-2016 Team of Advisors living with ALS. Here he talks about his hope that the data he donates will help not just one person – but many. Here’s more of his story: You can see how much good data can do. During the month of

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Your data doing good: The POEM Study

Epilepsy, Patient Experiences, Research / By patientslikeme

When you share your health data, we all learn Every minute of every day, people are sharing their health data on PatientsLikeMe. Some of you are focused on tracking how you’re doing over time. Many want to make sure the next person diagnosed can learn from your experience. All are contributing to the greater good,

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Your data doing good: The Fitbit study

Conditions, Research / By patientslikeme

When you share your health data, we all learn During #24DaysofGiving this December, we’ll highlight some of the most important things we’ve learned from data that members have selflessly shared, and all the good data donation is doing. One example is the Fitbit study we partnered with Biogen on earlier this year. Nearly 250 members

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Allison’s story

Bipolar disorder, Conditions / By patientslikeme

Last month we introduced Allison, a member of your 2015-2016 Team of Advisors living with bipolar II. She recently opened up in a video about how sharing her data on the site helped her recognize when she might have an episode, and partner better with her doctor to prevent new episodes from happening. You can

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Crohn’s & Colitis Awareness Week: Are you #IBDAware?

Conditions, Crohn's Disease, Ulcerative Colitis / By patientslikeme

Image courtesy of the Crohn’s & Colitis Foundation of America This week (12/1 through 12/7) is Crohn’s & Colitis Awareness Week. The Crohn’s & Colitis Foundation of America (CCFA) wants to know what awareness means to you, asking, “Are you #IBDAware?” Crohns disease and ulcerative colitis, collectively known as inflammatory bowel diseases (IBD), affect 1.6

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#24DaysofGiving has now begun!

Patient Experiences / By patientslikeme

Today is #GivingTuesday and we’re kicking off this “new tradition of generosity” with another #24DaysofGiving. What’s this about? #GivingTuesday is a day to celebrate generosity, and with #24DaysofGiving, we’re asking you to re-think what it means to give back. We’re hoping that after you celebrate by giving a donation of time or money to your

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PatientsLikeMe Encourages Sharing of Health Data for Good with 2nd Annual “24 Days of Giving”

2 Comments / Patient Experiences / By patientslikeme

The Gift of Health Data Can Help Others, and Advance Research CAMBRIDGE, MASS., December 1, 2015—On this #GivingTuesday, PatientsLikeMe is once again celebrating “the new tradition of generosity” by encouraging people to donate something unusual but vital: their health data. Starting today and continuing for #24DaysofGiving, PatientsLikeMe is asking anyone who is living with a

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