Out of the office: PatientsLikeMe at the Walk to Cure psoriasis in New York City

Last month, some of our PatientsLikeMe team members journeyed from Boston to New York City for the National Psoriasis Foundation’s Walk to Cure event. Hundreds of people turned out to walk on a very crisp, but sunny day. Jim Murray is on the PatientsLikeMe marketing team and shared his experience with everyone at the office when he got back.

“It was an incredibly inspiring day. One woman told us that she never misses a walk, but it wasn’t always that way. A family member convinced her to attend one of the walks a few years back, even though she was suffering from severe psoriasis and didn’t want to leave the house. She finally decided to go, and said that it brought tears to her eyes to see and connect with others just like her. She hasn’t missed a walk since.

There was another woman who has a 26-year-old son with psoriasis. She said he was too embarrassed and depressed to come with her to the event, but she came anyway, to learn how others cope with the same emotions her son is experiencing.

Everyone who we spoke to said that connecting with others who understood what they were going through positively impacted their lives; that talking to someone who could truly relate was important. We also heard many saying that they wanted to get more involved in the healthcare process by sharing their experiences in research.”

If you’re living with psoriasis, find others just like you in our growing community of almost 4,000 psoriasis patients on PatientsLikeMe. Learn what they’re doing to manage their condition with symptom and treatment reports, and share your own experience with a personal health profile or in the community forum.

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