June 2013

The “Are You Sleeping?” campaign kick off. How the PatientsLikeMe Team sleeps

Sleep and its impact on our lives is one of the hottest topics on PatientsLikeMe. It’s one reason why, over the next several months, PatientsLikeMe is going to be taking a deeper look at your sleep experiences and how they affect your overall health. So, we want to know – Are you sleeping? Keep an eye […]

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“The real me” An interview with psoriasis patient and PatientsLikeMe member Maria

Here at PatientsLikeMe, we’re continuing to talk with people who are sharing their health experiences to help raise awareness about their conditions and change medicine for good. For our latest interview, we spoke with Maria who has been living with psoriasis since age 14. Some of you may know her on PatientsLikeMe as pinkdragonrider. She

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“It’s all about attitude.” An interview with multiple sclerosis patient and PatientsLikeMe member Alys

Have you met Alys yet? Some of you may know her on PatientsLikeMe as browneyedgirl3. Alys was diagnosed with multiple sclerosis (MS) back in 1987 and has been sharing her own personal health journey on PatientsLikeMe since 2009. She recently took some time to talk to us about her diagnosis, staying optimistic and what inspired

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Keith & Sarah’s personal journey with rare lung disease. Part III, “Bonus round”

Over the last few months, Keith and Sarah have been sharing their journey with us. In this final interview of our three-part series, they talk about how he got on a transplant list and their “phones at the dinner table” policy. If you missed our first two interviews with Keith and Sarah, you can find

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Partnering with patients: An interview with Michael Evers and Ken Getz

PatientsLikeMe and the nonprofit Center for Information and Study on Clinical Research Participation (CISCRP) recently announced a new partnership with the global healthcare leader Sanofi (NYSE: SNY) to raise awareness about the benefits of participating in clinical trials. Michael Evers, Executive Vice President of Marketing and Patient Advocacy at PatientsLikeMe, and Ken Getz, Founder and

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Living with diabetes: An interview with Dr. Richard A. Jackson

For many, living with diabetes can be an overwhelming experience that comes with serious health concerns including heart attack, stroke, kidney complications and eye problems. However, Dr. Richard Jackson thinks there is another reason diabetes patients may feel overwhelmed… the medical establishment. “A typical diabetes education program series might tell you 150 things, but that

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PatientsLikeMe and inVentiv Health Partner to Accelerate Clinical Trial Research

First Agreement Between the Online Patient Network and Global Clinical Research Organization Promises to Help Speed Recruitment for Drug Development  BURLINGTON, MASS.  June 17, 2013 — inVentiv Health, offering best-in-class clinical, commercial and consulting services, today announced a partnership with the innovative online patient network PatientsLikeMe to bring more people more quickly into medical research

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Out of the office: PatientsLikeMe at the Walk to Cure psoriasis in New York City

Last month, some of our PatientsLikeMe team members journeyed from Boston to New York City for the National Psoriasis Foundation’s Walk to Cure event. Hundreds of people turned out to walk on a very crisp, but sunny day. Jim Murray is on the PatientsLikeMe marketing team and shared his experience with everyone at the office

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PatientsLikeMe Names Marcia Nizzari Vice President of Engineering

CAMBRIDGE, Mass.— June 6, 2013—PatientsLikeMe has named Marcia Nizzari Vice President of Engineering. In this role, Marcia creates the blueprint for future platform developments and oversees all engineering projects. A member of the management team, Marcia reports to Chief Operating Officer Sebastiaan Foppema. “Marcia has joined the team at a time when we’re evolving our

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