Recently, our ALS community mourned the loss of Persevering, a highly proactive three-star member who was known for his unfailing efforts to support fellow patients, record and share data, report website problems and recruit ALS clinical trial participants. Offline, he was also a tireless advocate for ALS awareness and research, attending conferences and lobbying on […]
Leaving a Legacy of Data at PatientsLikeMe Read More »
Today, October 29th, is World Psoriasis Day, sponsored by the International Federation of Psoriasis Associations. Here in the US, the National Psoriasis Foundation has created a special website – WorldofPsoriasis.com – for the occasion that illustrates the global nature of this chronic autoimmune disease, which affects 125 million people worldwide or nearly three percent of
Putting Psoriasis on the Map for World Psoriasis Day Read More »
PatientsLikeMe member Bev Ribaudo (“YumaBev”) was diagnosed with Parkinson’s disease (PD) at age 47, but it hasn’t dampened her flair for comedy. “Humor comes naturally to me, and a little disease like Parkinson’s can’t take it away,” she says. In fact, her condition has given her a new purpose: entertaining other “Parkies” with her deep
Spotlighted Author: Parkinson’s Humorist Bev Ribaudo on Dispensing Laughter Read More »
Do you have a creative outlet that helps you cope with your health condition? Here are two examples of Parkinson’s disease (PD) patients in our community who are expressing their emotions through painting, despite hand tremors and other challenging symptoms. (See even more PD patient artwork in this inspiring forum thread.) “Iggy the Iguana” by
Art as Therapy in Parkinson’s Disease Read More »
What’s it like to work at PatientsLikeMe? We are continuing to reveal just that with our monthly blog series “A Day in the Life,” which features PatientsLikeMe employees from different departments. Today we’d like to introduce you to Adam Darowski, a father of three who joined the technology team as a web developer exactly three years
A Day in the Life of PatientsLikeMe Web Developer Adam Darowski Read More »
Have you ever wondered how best to interact with someone who is living with depression, bipolar disorder or another mental health condition? Have you worried that you’re saying or doing the wrong things? Last week we recognized Mental Illness Awareness Week on the blog, and to continue our coverage, today we thought we’d share with
What to Do – and Not Do – When Someone Has a Mental Health Condition Read More »
On October 9th, Bloomberg TV aired a four-and-a-half minute “Innovators” segment profiling PatientsLikeMe’s journey as company. Filmed partially in our office in Cambridge, Massachusetts, the piece features PatientsLikeMe Co-Founder and Chairman Jamie Heywood as well as Ed Sikov, a PatientsLikeMe member with Parkinson’s disease. Our thanks go to Bloomberg’s Nicole Lapin for her in-depth coverage
PatientsLikeMe Featured on Bloomberg TV Read More »
Did you know that one in four adults – or approximately 57.7 million Americans – experiences a mental health problem in any given year? Or that one in 17 lives with a serious, chronic mental illness? Since 1990, National Mental Illness Awareness Week has been recognized by the U.S. Congress as a time for mental
Mental Illness Awareness Week 2012: Dismantling the Stigma Read More »
Last week, we recognized World Heart Day on the blog and discussed why there is an urgent need for awareness about heart disease and stroke, the world’s number one killer. We also talked about how heart disease can be an abstract concept until you are exposed to someone’s personal story. That’s why we are pleased
Rediscovering Life’s Simple Pleasures: An Interview with a Heart Patient Read More »
Did you know that 1 in 10 people worldwide have rare and genetic conditions? PatientsLikeMe was a proud sponsor of the 1st Annual Tribute to Champions of Hope, organized by our partner the Global Genes / RARE Project. Held on September 27th in Newport Beach, CA, the gala recognized outstanding individuals who are working to affect
Recognizing the Rare Disease Community’s Champions of Hope Read More »
