April 2012

The “Immense Benefits” of Online Health Reporting: An Interview with ALS Study Author Dr. Thomas Meyer

Earlier this month, we told you about a new study showing that ALS patients reporting their health status over the Internet (using a rating scale known as the ALSFRS-R) is just as reliable as a trained nurse rating the patient’s score.   Now, we’d like to share our interview with lead study author Dr. Thomas Meyer, […]

The “Immense Benefits” of Online Health Reporting: An Interview with ALS Study Author Dr. Thomas Meyer Read More »

Six Days Until the Parkinson’s Unity Walk

Parkinson’s Awareness Month isn’t over yet!  This month-long effort is capped off by the Parkinson’s Unity Walk, which takes place Saturday, April 28th, in New York City’s Central Park. The largest grassroots awareness event for Parkinson’s disease (PD), the Unity Walk is anticipated to attract more than 10,000 participants.  If you’ve never attended something of

Six Days Until the Parkinson’s Unity Walk Read More »

A Day in the Life of PatientsLikeMe Research Scientist Timothy Vaughan

What’s it like to work at PatientsLikeMe?  We are continuing to reveal just that with our monthly blog series “A Day in the Life,” which features employees from different departments.  So far, we’ve interviewed User Experience Engineer Cris Necochea, Research Assistant Shivani Bhargava and Office Manager Alison Dutton.  Today we hear from Research Scientist Timothy Vaughan,

A Day in the Life of PatientsLikeMe Research Scientist Timothy Vaughan Read More »

PatientsLikeMe Named One of Lead411’s “Hottest Companies in Boston”

Is it getting hot in here? Earlier this month, corporate research firm Lead411 announced its 2012 “Hottest Companies in Boston” awards, which recognize the fastest growing technology companies in the Boston area.  The award selection process started with over 1,776 companies and was narrowed down to the top 62.  We were one of them! Headquartered

PatientsLikeMe Named One of Lead411’s “Hottest Companies in Boston” Read More »

Spotlighted Blogger: Psoriasis Patient Alisha B. of “Being Me in My Own Skin”

Welcome to the latest installment of our “Spotlighted Blogger” series.  So far, we’ve interviewed patient bloggers living with gastroparesis, type I diabetes, bipolar I disorder, Parkinson’s disease and ALS, and today we introduce Alisha B., who felt alone in her struggles with psoriasis until “coming out” on her blog, Being Me in My Own Skin. Alisha is currently participating in

Spotlighted Blogger: Psoriasis Patient Alisha B. of “Being Me in My Own Skin” Read More »

Making the Impossible Possible: ALS Patient Tony “TEMPT ONE” Quan and the EyeWriter Device

For an ALS patient, an eye gaze system – a type of augmentative speech device that translates eye movements into words – can make it possible to communicate with loved ones when speech is impaired or lost.  But as animation studio owner Mick Ebeling found out, not every patient with advanced ALS has one.  The

Making the Impossible Possible: ALS Patient Tony “TEMPT ONE” Quan and the EyeWriter Device Read More »

ALS Patients Reporting Their Health Status over the Internet Just as Reliable as a Clinician in a Hospital

At PatientsLikeMe we’ve been collecting self-reported data about patients with ALS (PALS) since 2006 – over 5,000 PALS to be exact! ALS is a disease that causes muscle wasting in the arms, legs, head and chest, which leads to problems walking, eating, and even communicating. However, unlike a disease like diabetes where there’s a blood

ALS Patients Reporting Their Health Status over the Internet Just as Reliable as a Clinician in a Hospital Read More »

Preparing for Life After an Organ Transplant

Last week, we shared our interview with a liver transplant recipient who is living out her dreams post-transplant.  Today we’d like to add the insights of 32 organ transplant recipients who took part in an online discussion hosted by PatientsLikeMe.  Split equally in gender with ages ranging from 25 to 60 years old, our discussion

Preparing for Life After an Organ Transplant Read More »

Scroll to Top