We first introduced you to E-Patient Dave – a well-known blogger, author and keynote speaker in the healthcare space – last summer.  Given our similar views on many health matters, we see a lot of E-Patient Dave at the conferences and events we attend.  Case in point, our President and Co-Founder Ben Heywood was on a panel with him at the Military Health System Conference just a few weeks ago.

For this particular “high-speed” panel, each speaker was given just 12 minutes to share their story.  So what did E-Patient Dave do?  Exactly what any good digital age citizen would:  he covered the important things and then directed people to his website to find all the related websites and resources.  Given that he’s a cancer survivor and e-patient advocate who believes in “letting patients help,” we were curious what links E-Patient Dave recommends for others who are seeking to take control of their health and join the e-patient movement.

Here’s a sampling of Dave’s top resources along with a brief description:

All About the E-Patient Movement, and Its Founder, Dr. Tom Ferguson (“Doctom”)

• Society for Participatory Medicine, its journal and its blog e-patients.net (the hub)
• Medical Self-Care (pioneering 1985 article by Dr. Tom Ferguson)
• e-Patients as Medical Researchers (key 2002 article by Dr. Tom Ferguson)
• e-Patients White Paper (see Ferguson’s Seven Preliminary Conclusions, Chapter 2)
• Patient Activation Measure (Dave’s article about developing patient engagement)

Other Resources for the Budding E-Patient

• Visible Body (a good start to understanding anatomy)
• Open Notes (a doctor-patient project funded by the Robert Wood Johnson Foundation)
• Peer-to-Peer Healthcare (insightful 2011 Pew Internet independent research report)
• CaringBridge (patient blogs to ease the communication burden during a health crisis)
• GlowCaps (prescription bottle caps that use light/sound to help remind you)

(See Dave’s full list of resources here.)

What about all of you e-patients out there?  Do you have any Internet resources that other patients should know about?  Share your own recommendations in the comments section.

p.s.  In December, E-Patient Dave stopped by our office to talk to the team during our weekly Journal Club luncheon.  Stay tuned for a podcast of what he shared with us.

This entry was posted on February 23, 2012 at 11:11 am and is filed under ALS, Chronic Fatigue Syndrome/ME, Conditions, Conferences/Events, Epilepsy, Fibromyalgia, HIV/AIDS, Mood Conditions, Multiple Sclerosis, Openness, Organ Transplants, Parkinson's Disease, Rare Diseases, Technology. Tagged: Cancer, Dave DeBronkart, Dr. Tom Ferguson, e-patient advocate, E-Patient Dave, e-patient movement, health websites, Internet resources, Society for Participatory Medicine. You can follow any responses to this entry through the RSS 2.0 feed. You can leave a response, or trackback from your own site.