January 2012 |

The Personalized Medicine World Conference in Photos and Tweets

Last week, PatientsLikeMe Co-Founder Jamie Heywood had the honor of speaking at the Personalized Medicine World Conference (PMWC), a two-day event held at the Computer History Museum in Silicon Valley. His presentation was entitled “Patient Driven Convergence of Clinical Discovery and Care.” In recognition of the conference’s venue as well as the role that technology […]

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2011 “Wow Week” Highlights

Patient Experiences / By patientslikeme

Last June, we shared how our award-winning Clinical Trials tool was a product of “Wow Week,” which takes place every sixth week here at PatientsLikeMe. It’s essentially our version of Google’s “20-percent time,” or a period of unstructured time where our engineers have the freedom to work on their own ideas. We believe it fosters

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A Peek at the January Newsletter for Members

Patient Experiences / By patientslikeme

What kinds of things do we cover in our monthly newsletters for members? Take a look at the excerpt below from our January edition. Also, in case you didn’t know, anyone – whether a PatientsLikeMe member or not – can view our current and past newsletters in our Newsletter Archive. See what we’ve been up

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A New Way to Import “Blue Button” Patient Data from the VA

1 Comment / Patient Experiences / By patientslikeme

I love the conveniences that come from having my data moved around online (with my permission, of course). For example, TurboTax will pull all my information from my investment bank and the IRS, and then calculate how much I owe. With me doing hardly anything, I’m done in about 20 minutes! Similarly, Mint.com can pull

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Enter the Healthy New Year Video Challenge

Patient Experiences / By patientslikeme

Did you make a health-related New Year’s resolution? And are you using technology—such as a smartphone app or website—to achieve your goal? Create a short video about it, and you could win prizes ranging from $250 to $2,000 if your video is selected as one of the best! Sponsored by the US Department of Health

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A Day in the Life of PatientsLikeMe User Experience Engineer Cris Necochea

Patient Experiences / By patientslikeme

What’s it like to work at PatientsLikeMe? We are continuing to reveal just that with our monthly blog series “A Day in the Life,” which features various employees from different departments. Last month, we featured an interview with Research Scientist Mike Massagli, PhD, and today, we share our interview with User Experience Engineer Cris Necochea,

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Women: Protect Yourself Against Cervical Cancer

Patient Experiences / By patientslikeme

Each year in the US approximately 12,000 women are diagnosed with cervical cancer, and more than 4,000 lives are lost as a result. What makes this such a tragic statistic is the fact that cervical cancer can be prevented through vaccines and regular screenings in almost every case. That’s the all-important message to spread during Cervical

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Life with Cystic Fibrosis: Three Teenagers’ Perspectives

4 Comments / Patient Experiences / By patientslikeme

Unlike most of the health conditions we cover at PatientsLikeMe, cystic fibrosis is one of the few communities where the majority of our members are under the age of 29. In fact, approximately 60% of our 440 cystic fibrosis patients report that they either fall in the 0-19 or 20-29 age brackets. What exactly is

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What Do You Know About Thyroid Disease?

5 Comments / Patient Experiences / By patientslikeme

Let’s start with the basics: do you even know where your thyroid is? A small, butterfly-shaped gland located at the base of the neck (just below the Adam’s apple), the thyroid influences the function of the heart, brain, liver, kidneys and skin. That’s why it’s so important to know if you have a thyroid problem

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Today’s Photo: Texans in Motion for ALS

1 Comment / ALS / By patientslikeme

Please meet ALS patient alsgirl (front and center in the wheelchair), who led a PatientsLikeMeInMotion-sponsored team at the 2011 Walk to Defeat ALS in Dallas, Texas. A longtime PatientsLikeMe member who is part of the ALS Public Registry, alsgirl has been living with this degenerative disorder – also known as Lou Gehrig’s disease – for

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