http://blog.patientslikeme.com/2011/04/25/patientslikeme-refutes-published-clinical-trial/ PatientsLikeMe - Patients helping patients live better every day Tue, 14 May 2013 14:27:01 +0000 hourly 1 http://wordpress.org/?v=3.5.1 http://blog.patientslikeme.com/2011/04/25/patientslikeme-refutes-published-clinical-trial/comment-page-1/#comment-74030 » MyGlu.org = National Type 1 Diabetes Registry + Social Media “Wow Factor” - DiabetesMine: the all things diabetes blog Wed, 07 Sep 2011 13:01:38 +0000 http://blog.patientslikeme.com/?p=3348#comment-74030 [...] Patients on the Glu site will soon be able to not only search for clinical trials, but also add more self-reported data to be used in research projects, akin to what Patients Like Me has done. [...]

]]> http://blog.patientslikeme.com/2011/04/25/patientslikeme-refutes-published-clinical-trial/comment-page-1/#comment-64918 The Value of Openness: The PatientsLikeMe Blog » Raise Your Awareness of ALS (Lou Gehrig’s Disease) Fri, 20 May 2011 16:53:54 +0000 http://blog.patientslikeme.com/?p=3348#comment-64918 [...] that was published in the scientific journal Nature Biotechnology last month. The findings, which refuted a previous clinical trial, garnered a good deal of media coverage for not only showing the real-world effects of the drug (no [...]

]]> http://blog.patientslikeme.com/2011/04/25/patientslikeme-refutes-published-clinical-trial/comment-page-1/#comment-63216 Sarkis Dallakian Tue, 26 Apr 2011 00:36:34 +0000 http://blog.patientslikeme.com/?p=3348#comment-63216 Thank you for this article. It was interesting to read the part about self-reported data. I can image that it would be harder to deal with clinical trials that involve large financial interests. In any case, sharing stories with patients like me is priceless. Thank you for all the great job you do to enable that.

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