Comments on: Harnessing New Media for Patient Advocacy (Part II)

By: sherry thomas

sherry thomas — Thu, 07 Jan 2010 16:09:59 +0000

hi friend!!YOU ARE NOT ALONE!! I SUFFER FROM PANIC DISORDER!! I AM ON 5 DIFFERENT MEDICATIONS. I LIVE IN MASONTOWN PA. I AM UNDER MENTAL HEALTH CARE. I HAVE SUFFERED WITH THIS CONDITION SINCE 1983!! IT TOOK MANY YEARS TO FIND A DOCTER TO TREAT ME. THANK GOD SOMEONE BELEIVE IN ME!! PLEASE EMAIL ME!!

By: Charlene"pokie too"Pryor

Charlene"pokie too"Pryor — Fri, 01 Jan 2010 02:13:39 +0000

Just at this very minute I am aggressively fighting not only Parkinson’s but Epilepsy and Acute Rheumatoid Arthritis. The amount of mail I receive daily is huge. My phone never stops ringing and because of this I hope in some way I am making a mark on solving the puzzles in these diseases. I was so tickled when I saw the Arthritis Foundation getting on board with Parkinson’s and Epilepsy. So many Pd patients progress on to these diseases as the illness gets worse and because of the huge amount of pills needed to fight these, they stop treatment and chose to die. Research is lost at this time and cross referencing stops. A plus in PD research will be a plus for all Neurological diseases and the world needs to realize how many with PD develop other diseases later through stress….Thank you PLM for fighting for those who can no longer fight love Pokie

By: LESLIE WALLETT

LESLIE WALLETT — Tue, 29 Dec 2009 07:08:11 +0000

THANK YOU FOR THIS WEBSITE. I AM CONSTANTLY TELLING SCHOOL OFFICIALS, TEACHERS, SOCIAL SERVICES, LAW ENFORCEMENT AND EVEN MEDICAL PROFFESIONALS TO DO RESEARCH ON MULTIPLE SCLEROSIS, I HAVE CALLED THE STATE JUSTICE DEPARTMENT FOR THE FEDERERAL DISABILITY ACT. THE DEHUMANITIZATION OF THIS DISEASE AND THE EFFECT IS HAS ON OUR CHILDREN IS RIVOTING. I ACTUALLY HAD A VERY UNDEREDUCATED SCHOOL SECRETARY THAT KNEW I HAD MS IN A VERY AFFLUENT NEIGHBORHOOD IN A SUBURB OF AUSTIN TEXAS CALL CHILD PROTECTIVE SREVICES AND THE POLICE ON ME. THE SCHOOL WAS TOLD I WAS IN A FLARE UP AND THE DOOR WAS TOO HEAVY. THEY TOLD THE POLICE I WAS DRUNK. THEN CPS STARTED COMING REGURALY DRUG TESTING ME. I HAVE HAD MY EIGHT YOUR OLD TRAUMATIZED AND HER CHILDHOOD RIPPED FROM HER. I AM SUING NEIGHBORS, SCHOOLS AND MANY OTHER PEOPLE FOR CIVIL RIGHTS VIOLATIONS AS WELL AS DEFAMATION OF CHARACTER AND HARRASSMENT. WE NEED TO GET THE WORD OUT BIGGER BETTER AND LOUDER ON THE DISEASE.WE CAn’t let it hurt our kids, when it already hurts the patients so so much. ANY ATTORNEYS THAT WISH TO HELP OR NEWS MEDIA THAT WANT TO BRING THIS ON THE MAP IF IT HAS AFFECTED YOU OR YOUR FAMILY, I AM INCREDIBLY STRONG AND HAVE A HUGE NETWORK FOR BACKUP. PLEASE CONTACT ME THROUGH THIS WEBSITE OR BY COMMENTING.YOU MAY ALSO FIND ME ON MYSPACE. THANK YOU AND GOD BLESS.