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	<title>Comments on: Let&#8217;s make clinical trials more rewarding for patients</title>
	<link>http://blog.patientslikeme.com/2008/05/19/lets-make-clinical-trials-more-rewarding-for-patients/</link>
	<description>PatientsLikeMe - Patients helping patients live better every day</description>
	<pubDate>Fri, 21 Nov 2008 02:35:43 +0000</pubDate>
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		<title>By: jinglingjoy</title>
		<link>http://blog.patientslikeme.com/2008/05/19/lets-make-clinical-trials-more-rewarding-for-patients/#comment-3330</link>
		<dc:creator>jinglingjoy</dc:creator>
		<pubDate>Wed, 18 Jun 2008 20:57:24 +0000</pubDate>
		<guid>http://blog.patientslikeme.com/2008/05/19/lets-make-clinical-trials-more-rewarding-for-patients/#comment-3330</guid>
		<description>Dr Paul Wicks,

I am not familiar with the ALS drug trial mentioned in your article, or the cancer trials but it sounds like they, or at least their "fall-out" (outcome) was similar to the GDNF/Amgen negative response to the patient participants such as myself.

I very much appreciated your article and would like to
refer you to the PPP aka  http://www.pdpipeline.org/
just in case you were not aware of its exsistence.

sincerely
jingle</description>
		<content:encoded><![CDATA[<p>Dr Paul Wicks,</p>
<p>I am not familiar with the ALS drug trial mentioned in your article, or the cancer trials but it sounds like they, or at least their &#8220;fall-out&#8221; (outcome) was similar to the GDNF/Amgen negative response to the patient participants such as myself.</p>
<p>I very much appreciated your article and would like to<br />
refer you to the PPP aka  <a href="http://www.pdpipeline.org/" rel="nofollow">http://www.pdpipeline.org/</a><br />
just in case you were not aware of its exsistence.</p>
<p>sincerely<br />
jingle</p>
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