Comments on: It’s been two years!! ALS Community Report http://blog.patientslikeme.com/2008/03/17/it%e2%80%99s-been-two-years/ PatientsLikeMe - Patients helping patients live better every day Sun, 12 Feb 2012 02:28:38 +0000 http://wordpress.org/?v=2.7 hourly 1 By: Harry Nafpliotis http://blog.patientslikeme.com/2008/03/17/it%e2%80%99s-been-two-years/comment-page-1/#comment-52876 Harry Nafpliotis Tue, 04 Jan 2011 23:24:32 +0000 http://blog.patientslikeme.com/?p=69#comment-52876 6.I’ve been diagnosed recently with ALS(10/6/10),but my symptoms began about a year and a half ago. I’ve been ambulatory with a reg. cane held in the right hand for the past three mos. I am 71y.o. and I’ve been a physical therapist for the past 40 years. I also have a Ph.D., in biomechanics. My purpose of writing this note is to find more information about ALS, by a mutual exchange. I’ be interested in hearing from anyone. Thank you Comment by Harry Nafpliotis — January 4, 2011 @ 5:21 6.I’ve been diagnosed recently with ALS(10/6/10),but my symptoms began about a year and a half ago. I’ve been ambulatory with a reg. cane held in the right hand for the past three mos. I am 71y.o. and I’ve been a physical therapist for the past 40 years. I also have a Ph.D., in biomechanics. My purpose of writing this note is to find more information about ALS, by a mutual exchange. I’ be interested in hearing from anyone. Thank you

Comment by Harry Nafpliotis — January 4, 2011 @ 5:21

]]> By: Harry Nafpliotis http://blog.patientslikeme.com/2008/03/17/it%e2%80%99s-been-two-years/comment-page-1/#comment-52874 Harry Nafpliotis Tue, 04 Jan 2011 23:21:12 +0000 http://blog.patientslikeme.com/?p=69#comment-52874 I've been diagnosed recently with ALS(10/6/10),but my symtoms began about a year and a half ago. I've been ambulatory with a reg. cane held in the right hand for the past three mos. I am 71y.o. and I've been a physical therapist for the past 40 years. I also have a Ph.D., in biomechanics. My purpose of writing this note is to find more information about ALS, by a mutual exchange. I' be interested in hearing from anyone. Thank you I’ve been diagnosed recently with ALS(10/6/10),but my symtoms began about a year and a half ago. I’ve been ambulatory with a reg. cane held in the right hand for the past three mos. I am 71y.o. and I’ve been a physical therapist for the past 40 years. I also have a Ph.D., in biomechanics. My purpose of writing this note is to find more information about ALS, by a mutual exchange. I’ be interested in hearing from anyone. Thank you

]]> By: romargrey http://blog.patientslikeme.com/2008/03/17/it%e2%80%99s-been-two-years/comment-page-1/#comment-19048 romargrey Sat, 16 May 2009 21:55:09 +0000 http://blog.patientslikeme.com/?p=69#comment-19048 i would like to know if there is current research on high levels of antioxidants as a treatment modality for ALS to lessen symptoms. If the free radical theory contributes to the cause or symptoms of ALS, can taking high levels of antioxidants cause additional problems or is there such a thing as a toxic blood or organ level? r2 i would like to know if there is current research on high levels of antioxidants as a treatment modality for ALS to lessen symptoms. If the free radical theory contributes to the cause or symptoms of ALS, can taking high levels of
antioxidants cause additional problems or is there such a thing as a toxic blood or organ level? r2

]]> By: Gabriel J. Gillotti http://blog.patientslikeme.com/2008/03/17/it%e2%80%99s-been-two-years/comment-page-1/#comment-14312 Gabriel J. Gillotti Sun, 08 Feb 2009 02:25:25 +0000 http://blog.patientslikeme.com/?p=69#comment-14312 The onset of my ALS began in 2/07 altho the final diagnosis occurred in 11/08. The initial diagnosis was that my leg weakness was attributable to my having taken statins for a number of years and leg muscle weakness is a recognized side effect.There have been and continue to be a number of studies/reports on the possible connection between statins/ALS, one of which is underway at Stanford Univ.My situation would appear to be one of those cases.I am currently participating in a clinical trial at the Forbes Clinic in San Francisco on the benefit of lithium, the trial is underway at ten locations around the country involving about 100 patients.It is a 52 week trial which began about a month ago. The onset of my ALS began in 2/07 altho the final diagnosis occurred in 11/08. The initial diagnosis was that my leg weakness was attributable to my having taken statins for a number of years and leg muscle weakness is a recognized side effect.There have been and continue to be a number of studies/reports on the possible connection between statins/ALS, one of which is underway at Stanford Univ.My situation would appear to be one of those cases.I am currently participating in a clinical trial at the Forbes Clinic in San Francisco on the benefit of lithium, the trial is underway at ten locations around the country involving about 100 patients.It is a 52 week trial which began about a month ago.

]]> By: Rich F http://blog.patientslikeme.com/2008/03/17/it%e2%80%99s-been-two-years/comment-page-1/#comment-8168 Rich F Sat, 06 Dec 2008 03:29:24 +0000 http://blog.patientslikeme.com/?p=69#comment-8168 I saw the CBS News profile on Patients Like Me and wanted to contribute some information that some people may find helpful. For those of you unaware of the Center For Self-Healing in San Francisco i strongly suggest you contact them. Meir Schneider has worked with all kinds of neurological conditions, including ALS and MS as well as muscular dystrophy, vision disorders, rheumatoid arthritis, etc for over 30 years with remarkable impact. You can check out www.self-healing.org. It's free and many people could be helped to have a longer and more empowered life. I saw the CBS News profile on Patients Like Me and wanted to contribute some information that some people may find helpful. For those of you unaware of the Center For Self-Healing in San Francisco i strongly suggest you contact them. Meir Schneider has worked with all kinds of neurological conditions, including ALS and MS as well as muscular dystrophy, vision disorders, rheumatoid arthritis, etc for over 30 years with remarkable impact. You can check out http://www.self-healing.org. It’s free and many people could be helped to have a longer and more empowered life.

]]> By: Marlene Fritz http://blog.patientslikeme.com/2008/03/17/it%e2%80%99s-been-two-years/comment-page-1/#comment-3974 Marlene Fritz Fri, 18 Jul 2008 04:01:50 +0000 http://blog.patientslikeme.com/?p=69#comment-3974 I received the ALS websight update today and deleted it by mistake. May I please receive annother mailing? Thank you. I received the ALS websight update today and deleted it by mistake. May I please receive annother mailing? Thank you.

]]> By: Caren http://blog.patientslikeme.com/2008/03/17/it%e2%80%99s-been-two-years/comment-page-1/#comment-271 Caren Sun, 23 Mar 2008 04:16:16 +0000 http://blog.patientslikeme.com/?p=69#comment-271 Great job on the site. I wanted a place for people to share their stories and created www.ourMSstories.com by myself - but I love all the charts and graphs and information you have been able to gather. Giving people a voice in an entirely new way. Keep up the great work. -Caren Great job on the site. I wanted a place for people to share their stories and created http://www.ourMSstories.com by myself - but I love all the charts and graphs and information you have been able to gather. Giving people a voice in an entirely new way. Keep up the great work.
-Caren

]]>