Comments on: It’s been two years!! ALS Community Report

By: romargrey

romargrey — Sat, 16 May 2009 21:55:09 +0000

i would like to know if there is current research on high levels of antioxidants as a treatment modality for ALS to lessen symptoms. If the free radical theory contributes to the cause or symptoms of ALS, can taking high levels of
antioxidants cause additional problems or is there such a thing as a toxic blood or organ level? r2

By: Gabriel J. Gillotti

Gabriel J. Gillotti — Sun, 08 Feb 2009 02:25:25 +0000

The onset of my ALS began in 2/07 altho the final diagnosis occurred in 11/08. The initial diagnosis was that my leg weakness was attributable to my having taken statins for a number of years and leg muscle weakness is a recognized side effect.There have been and continue to be a number of studies/reports on the possible connection between statins/ALS, one of which is underway at Stanford Univ.My situation would appear to be one of those cases.I am currently participating in a clinical trial at the Forbes Clinic in San Francisco on the benefit of lithium, the trial is underway at ten locations around the country involving about 100 patients.It is a 52 week trial which began about a month ago.

By: Rich F

Rich F — Sat, 06 Dec 2008 03:29:24 +0000

I saw the CBS News profile on Patients Like Me and wanted to contribute some information that some people may find helpful. For those of you unaware of the Center For Self-Healing in San Francisco i strongly suggest you contact them. Meir Schneider has worked with all kinds of neurological conditions, including ALS and MS as well as muscular dystrophy, vision disorders, rheumatoid arthritis, etc for over 30 years with remarkable impact. You can check out http://www.self-healing.org. It’s free and many people could be helped to have a longer and more empowered life.

By: Marlene Fritz

Marlene Fritz — Fri, 18 Jul 2008 04:01:50 +0000

I received the ALS websight update today and deleted it by mistake. May I please receive annother mailing? Thank you.

By: Caren

Caren — Sun, 23 Mar 2008 04:16:16 +0000

Great job on the site. I wanted a place for people to share their stories and created http://www.ourMSstories.com by myself - but I love all the charts and graphs and information you have been able to gather. Giving people a voice in an entirely new way. Keep up the great work.
-Caren