Comments on: The Value of Openness http://blog.patientslikeme.com/2007/12/13/the-value-of-openness/ PatientsLikeMe - Patients helping patients live better every day Thu, 24 Jul 2008 14:20:33 +0000 http://wordpress.org/?v=2.3.1 By: adrian http://blog.patientslikeme.com/2007/12/13/the-value-of-openness/#comment-54 adrian Thu, 17 Jan 2008 02:34:11 +0000 http://blog.patientslikeme.com/2007/12/13/the-value-of-openness/#comment-54 yikes .. thanks for the responce .. yikes .. thanks for the responce ..

]]> By: David S. Williams III http://blog.patientslikeme.com/2007/12/13/the-value-of-openness/#comment-15 David S. Williams III Thu, 27 Dec 2007 16:59:14 +0000 http://blog.patientslikeme.com/2007/12/13/the-value-of-openness/#comment-15 Adrian, you bring up an excellent point. The current healthcare system is still rooted in privacy as a rule, which obviously protects patients' information The value of openness spreads only if people like you continue to try to engage their health care team to view your patient profile. Some health care professionals (doctors, nurses, therapists, etc.) aren't ready to engage in this type of activity yet. Don't despair. People are becoming more and more open to sharing health information every day. If patients drive this movement, then doctors, nurses, therapists, case workers, everyone will engage in the sharing of information for the benefit of each individual patient as well as all people with life changing conditions. That day is coming.... Adrian, you bring up an excellent point. The current healthcare system is still rooted in privacy as a rule, which obviously protects patients’ information

The value of openness spreads only if people like you continue to try to engage their health care team to view your patient profile. Some health care professionals (doctors, nurses, therapists, etc.) aren’t ready to engage in this type of activity yet.

Don’t despair. People are becoming more and more open to sharing health information every day. If patients drive this movement, then doctors, nurses, therapists, case workers, everyone will engage in the sharing of information for the benefit of each individual patient as well as all people with life changing conditions. That day is coming….

]]> By: Adrian http://blog.patientslikeme.com/2007/12/13/the-value-of-openness/#comment-14 Adrian Thu, 27 Dec 2007 16:14:27 +0000 http://blog.patientslikeme.com/2007/12/13/the-value-of-openness/#comment-14 openess is definately important all across the board ... i don't pretend to know all, but can only give my experiences ... i have no clue as to why, if it is so open here , the people i invited couldn't even respond with a "no thank you" to be my care team .. and the one that did , said he would reply , along with two others , and i have heard nada .. open right ? do i not qualify for an answer ? no response necessary .. since no one else here cares to ... agserra openess is definately important all across the board … i don’t pretend to know all, but can only give my experiences … i have no clue as to why, if it is so open here , the people i invited couldn’t even respond with a “no thank you” to be my care team .. and the one that did , said he would reply , along with two others , and i have heard nada ..

open right ? do i not qualify for an answer ?

no response necessary .. since no one else here cares to … agserra

]]> By: pussycat http://blog.patientslikeme.com/2007/12/13/the-value-of-openness/#comment-6 pussycat Tue, 18 Dec 2007 08:17:09 +0000 http://blog.patientslikeme.com/2007/12/13/the-value-of-openness/#comment-6 I remember your name and thank you for contacting me. We are all chasing the same dream a cure for this wretched condition and I would be willing to undergo as many interviews as necessary and raise as money as I can to achieve this. I remember your name and thank you for contacting me. We are all chasing the same dream a cure for this wretched condition and I would be willing to undergo as many interviews as necessary and raise as money as I can to achieve this.

]]> By: David S. Williams III http://blog.patientslikeme.com/2007/12/13/the-value-of-openness/#comment-5 David S. Williams III Sun, 16 Dec 2007 02:44:12 +0000 http://blog.patientslikeme.com/2007/12/13/the-value-of-openness/#comment-5 That's a great question. Partners include nonprofit advocacy organizations, academic and government research institutions, as well as the life science industry. With our nonprofit and research partners we do arrange special sharing conditions for anonymous aggregated data. The life sciences industry typically pays for anonymous data which is currently the main revenue driver for PatientsLikeMe. That’s a great question. Partners include nonprofit advocacy organizations, academic and government research institutions, as well as the life science industry. With our nonprofit and research partners we do arrange special sharing conditions for anonymous aggregated data. The life sciences industry typically pays for anonymous data which is currently the main revenue driver for PatientsLikeMe.

]]> By: j doh http://blog.patientslikeme.com/2007/12/13/the-value-of-openness/#comment-4 j doh Sat, 15 Dec 2007 07:20:41 +0000 http://blog.patientslikeme.com/2007/12/13/the-value-of-openness/#comment-4 do you share patient data collected on the site with trusted partners, or do you sell it to them? do you share patient data collected on the site with trusted partners, or do you sell it to them?

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